A Loss of Autonomy

forsythiaThe following reflection was written by Forsythia.

There are turning points in my infertility experience that will stick with me forever. Even for memories that I view differently now, their potency is as alive and near to me today as it was then. One of the most powerful of these moments is when I realized that the only choices available to us in order to grow our family required including strangers in a very intimate part of our lives. And not just temporarily—these strangers would be part of our journey for the long haul.

For six years, my husband and I had been letting go of the picture in our heads of how our children would come into being. One option after another presented itself and drifted away. Before we felt ready for it, we were spending countless hours picking apart adoption and its implications. In this process, we found ourselves drawn towards embryo adoption. Our first concept of what this would look like for us included anonymity. We were still grieving the loss of our dream for biological children, and the only way we could wrap our minds around bringing an adopted child into our lives was to think of them as ours–which is to say unattached from anyone else.

Our doctor told us that the most challenging part of embryo adoption would be finding embryos. We could go through an agency that would double the price of our procedure, or we could be wait-listed for an indeterminate length of time. Months before this appointment, we’d been told through a third party about a couple in our city looking to adopt out their embryos. What had once seemed like a random happenstance suddenly felt like a miracle. We immediately started pursuing more information about this opportunity.
Our mutual friend relayed that this couple was very interested in connecting, but asked that we meet with them as a next step. We were wrestling with so many fears associated with adoption—questions of attachment and interference and uncertainty—and we hoped, perhaps truly believed, that we could avoid many of these challenges if we entered into a closed adoption. I was so angry when I learned of their request. Having a child felt closer than ever before and this felt like an unnecessary, even selfish, roadblock between us and that possibility.
We took some time to carefully consider before responding to the donors’ request. During this period, I was standing in my kitchen with a good friend, processing the intense emotions I was feeling about whether or not to pursue this particular embryo adoption. As through a fog, I sensed an emotional block obstructing my path. I could not name it, but it was keeping me from moving forward. My friend asked one pointed question after another and I struggled to express what I was feeling. When I finally named the mysterious block, the words left my lips before my brain could even process them:
I want a child that is just ours! I don’t want anyone else to be involved, but those are our only options. 

As with most of my infertility losses, I was blindsided by this realization. It was a particularly hard one to admit because it was a complicated mix of justifiable and unjustifiable emotions. Saying it aloud helped me to see that my grief over this loss was the source of the anger I was directing towards our potential donors. The full weight of this loss settled over me, and I wept in the arms of a friend who let me feel it without judging or trying to fix me. The anger dissipated.

We saw a counselor and I attended an adoption support group for several months. We quickly came to see not just the validity, but the potential healthiness of the donors’ desire to be connected–for our child’s sake more than anyone’s.

It is difficult for me not to minimize the effect of this loss–one of freedom, of autonomy. My instinct is to downplay its trauma: Even this loss had its gain, though it took me a very long time to see it. But while I was waiting for things to make sense, this loss was a very real death. For me to have the desire of my heart–something so many around me were achieving naturally–I had to surrender independence. For whether we chose open or closed adoption, someone other than us would be part of the life of our child in a complicated, unique way.

We said yes, entering into an arrangement that required us to die to the things we had always known and imagined about this part of our lives, including a certain independence. It was one of the hardest things I’ve ever done. We mourned our dying dreams and began to let them go as we stepped into the unknown, not certain where our feet would land.

The Pervasiveness of Loss

pic_windswept_hawthorn1The following reflection was written by Hawthorne. 

For me, infertility loss cannot be neatly summarized or packaged. It’s a messy ball of loose nerve endings and raw edges that leaves you simultaneously emotionally overflowing and emotionally empty. There is no single thing for me that hurt the most, just many, many “small” things.

(Note that the following is a list from one perspective at one point in time and obviously oversimplifies some very complicated issues.)

 Losses and Griefs:

-Being on the outside, excluded from the “happy, normal people” whose lives go just as planned and have no complicated feelings about babies or pregnancy.

-Feeling out of control of my body.

-Feeling physically, emotionally, and mentally weak, especially during infertility treatments.

-Feeling empty and barren in a way I think is pretty impossible to understand without experiencing it.

-Feeling the loss of privacy in having to go through medical treatments that felt humiliating and degrading to me.

-Losing the hope that there would ever be a little one who was the result of my husband and me: of our marriage and our lives together.

-Feeling utterly alone.

-Losing the dream of being a mom the “simple” way, with a child that undeniably “belonged” to us and owed no ties to anyone else (ie: his or her birth family).

-Feeling so much anguish over being the reason my husband would never get to see his own birth child when that was such a deep desire for him, and knowing that my past choices and pain were taking this from him.

-Losing the dream that sex would ever just be fun, simple, or easy, instead of the complex and emotion-ridden thing it is during infertility.

-Fearing the loss of joy around kids and babies when they have always been some of my favorite humans. (I am grateful for friends who encouraged me to push and fight through my hurt in order to stay with them, rightly telling me I would lose a big part of myself if I stepped away from kids and babies.)

-Knowing that no matter what happened, there would be no “neat ending” to my story.

The Loss of Connection, part 2

forsythiaThe following reflection was written by Forsythia.

 

“The friend who can be silent with us in a moment of despair or confusion, who can stay with us in an hour of grief and bereavement, who can tolerate not knowing… not healing, not curing… that is a friend who cares.”
–Henri Nouwen

As I evaluate the losses my husband and I have accrued through our infertility journey, the most obvious one to me is the death of our dream to have biological children. There are so many other losses attached to that, from seeing our features in a child’s face to what the process of conception looks like.

But as a new mother to an adopted son, there is another great loss that haunts me. It is powerfully devastating: a heart-aching loss I never anticipated. I am reminded of it especially in the daily text exchange between me and my best friend, Dogwood.

She is my go-to on any manner of baby-related subjects:

Did you ever have trouble with your newborns being gassy or straining to poop?

At what age/weight did you move up to the next level of car seat, and would you recommend the one you have?

Did you use essential oils on yourself like normal even while breastfeeding?

And also the person with whom I share every sweet revelation or difficult moment:

HE’S SO COZY I COULD SNUGGLE FOREVER 

How silly all my fears [about adoption] seem now

He was rotten all night

She’s always there with a word of wisdom, solidarity, encouragement. The way she loves my son is breathtaking. Her willing, joyful, tireless involvement in this new stage of my life is a priceless gift.

This is a gift that I did not, could not, give to her.

When she was becoming a mom for the first time, I was in the early stages of discovering our infertility–in that brutal period of adjustment where expectations are shattering, dreams dying, hope dissipating. My husband was years away from the emotional stage of processing that I was in and I felt utterly alone. I was in shock and struggling with grief, and every new pregnancy or birth I encountered threw a giant spotlight on my wretched emptiness.

So when Dogwood called to tell me she was pregnant with her first child, it was indescribably painful. A hot wave of dread crashed over me. Tears flooded my eyes. Through a constricting throat, I managed to congratulate her and tell her I was happy, lying because I was ashamed of how I felt and because I believed it’s what she wanted to hear. Somehow, I kept my composure until we hung up, and then I called the only friend I knew at the time who had experienced infant loss, the only friend I could think of who might understand the weight on my heart. On the phone with her, I sat in a dark bathroom, trying to keep my tears secret from my husband as I sobbed uncontrollably into the receiver.

Soon after, Dogwood made me confess what my true reaction to her news had been: even then she knew me so well that concealing my feelings from her was impossible. That was one of our first and biggest fights; it was what I had feared would happen, but strangely, not for the reason I had feared it. Instead of being upset because her pregnancy had brought me pain, she was upset because I was pulling away from her, trying to hide my true self from her. I believe that this conversation set the tone for our relationship over the years to come. It was when Dogwood told me “I’m all in.”

I wish I could say that her willingness to walk alongside me in my pain made me more open to her joy. Perhaps it did in some ways; nevertheless, it did not make me able to be emotionally present in her early days of motherhood—with her first nor, sadly, her second child.

These days, as I eagerly send her a question regarding the daily rituals of parenthood, or text her a picture of the son I can’t seem to stop photographing, it is ever in my mind that she never had the luxury of sending me such messages. There were no phone calls or texts venting new mom frustrations, and I knew she was careful about expressing excitement and love for her children to me.

Infertility comes with an astronomical price tag. In the thick of it, I was giving my friend everything that I felt able to give to her, and only now do I see how little that was comparatively. There are parts of Dogwood’s life that I completely missed; a season of her growth and experience as a person that I will never know. The grief of infertility took this from me, and I will never get it back.

I have no way of knowing to what degree this loss led to gain in our relationship: how much the honest working through of our pain, frustration, sadness, and joy has contributed to my longing to know her more and more. I cannot separate the two—I wish I could for her sake. But perhaps we’re not meant to.

I cannot now, nor ever will be able to express my gratitude towards Dogwood, and to all the others who allowed infertility to take from them so that they might have more of me.

The Loss of Connection, part 1

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The following reflection was written by Dogwood.

Forsythia and I have a unique friendship: one of those once-in-a-lifetime connections. Our souls just recognize each other. She and her husband battled infertility from the start. She was never on birth control and was surprised many times at the beginning of their marriage when she was not pregnant. I remember the first time I witnessed a reaction to a negative pregnancy test. Forsythia had come over to hang out with my roommate and I at our tiny college duplex. She had stopped at the drugstore on the way to pick up a test. She told us when she arrived that it was just a precaution; her period could come any day and she didn’t think it would be positive, though she hoped it might be. We changed the CD, sipped iced tea, caught up on each other’s lives. Then, it was time to look at the test. We were all very excited at the possibility of a baby for our first married friends! We had a lot of hope that it would be positive, though there were questions of how they would provide and make room in their lives for a baby. I’m sure I held my breath as she walked out of the bathroom holding the little white stick. Sure enough, it was negative.

We all felt it–the loss of hope. Little did we know that my friend and her husband would never conceive a biological child. I could never have imagined what it would be like to walk alongside my best friend as she watched her dream of being a mother slip away. I was still a young woman and those thoughts were not in my realm of imagination at the time.

Watching Forsythia experience one loss after another was unbearable. I did my best to stick with her through the ups and downs of her and her husband’s uncertain journey towards parenthood. What this looked like was mostly listening and mourning with her. I shook my head at the awful things people would say to them about having children, and held my breath when mutual friends announced new pregnancies.

During this time, my husband and I received news from my doctor: “If you want to have biological children of your own, you need to do it now” (I was 24 at the time). They had discovered endometriosis in my uterus after an extensive myomectomy. We wanted children, but had planned to wait a few more years. I knew I wanted to be a mother and that I wanted to see my husband father our children, so our plans changed and we started trying to get pregnant as soon as I was recovered from my surgery. I got pregnant after trying for 2 months. Sharing this news with Forsythia was one of the hardest things I’ve ever done. She and her husband were in the trenches of infertility: telling her that I was pregnant felt like sticking a finger into her open wound.

I was unprepared for motherhood; I was thrown into it by the circumstances of my health. I was excited and full of joy and could not share any of this with my best friend. Up to this point in our friendship, there wasn’t much we hadn’t shared. It felt strange and alienating to hide this really important part of my life from her. I had made many transitions in life with her by my side–graduating college, beginning a career, marriage–and now I was transitioning into motherhood without her. She could not come with me. I could not expect her to be happy for me.

My husband and I had moved back to our hometown shortly before getting pregnant. It was a lonely time for me for many reasons. I had my family, but I had no community–no one to walk with me into this very scary world of motherhood. I needed Forsythia. She was unavailable. I didn’t get to send her videos and pictures of my son doing absolutely nothing (that’s what most of those first pictures and videos are, after all). I couldn’t call her to vent about wishing my husband would hear the baby crying at night before me, or about the marital fights that this caused. I couldn’t ask her to come see us in the hospital after my son was born. I couldn’t call her from the hospital to tell her that I wanted to go home, or that I wanted my baby to latch properly so that my nipples would stop bleeding and my milk would stop clogging. I desperately needed her to hear how I was wronged by hospital staff and our doctor–how they stole the first hour of my son’s life from me. I needed her to cry with me and sit with me in the confusion and pain. She couldn’t. Her loss became my loss in an unexpected way.

Instead of sharing my life with her at this time, when we spoke it was mostly about what was going on in her life, and any part of my life that my son didn’t intrude upon. She did what she could; she asked about him when she was able to bear it. But I never dared go into much detail for fear of hurting her more.

Our friendship survived this dark period. I missed her and I know that I could have used her support during those first years of my kid’s lives, but I was able to forgive her for being absent at such an important time for me because I understood that she wasn’t able. I knew that if she could, she would. I trusted her heart.

Infertility does not happen in a vacuum. The pain, confusion, and loss of infertility will reach as a far as it is allowed. I willingly stepped into Forsythia’s pain. Of the losses I chose to endure, losing our friendship was not one of them, because I knew that the heartache was only a season. We are so apt to believe that what is now will always be. That is the lie we tell ourselves, a lie we must reject. As Forsythia and I faced loss together, I embraced hope: that she would be a mother; that we would walk that road together one day; that there was meaning behind the pain we endured. I gripped tightly to these beliefs for my friend, whose heart did not have the strength to believe them, but also for myself: what I was giving up was not in vain.

 

The Loss of Mirrors

 

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Weeping Willow, Claude Monet

The following reflection was written by Willow.

One of the losses that has become part of my story is the loss of a common experience with other women: I have not been pregnant and will never be pregnant. I do not know what it feels like to carry a baby in my body, feel him move inside me, deliver him into the world.

I remember talking to an acquaintance about my infertility and she quickly tried to console me, saying “Well, at least you don’t have to deal with morning sickness!” I thought to myself, “I would give anything to deal with morning sickness right now.” When my mom friends start talking about what it was like to be pregnant, I immediately become a spectator instead of a participant. I listen with curiosity, not resentment. But the familiar feeling of loss is right there with me every time.

Connected to this is another loss: I will never have a child that looks like me. In the adoption world, this is called “the loss of mirrors.” My brother’s daughter has my granddaddy’s red hair. My sister’s kid has her daddy’s adorable scrunchy face. I will never know what traits a biological child might have gotten from me. I have a beautiful, almond-skin, black haired little boy who looks nothing like anyone in my family or my husband’s family. No one picks me out of a crowd as my son’s mommy.

Everyone loves to make those biological connections–“Oh, she looks just like her mommy when she was little.” Or, “He has his daddy’s thick hair.” Again, I become a spectator of these exchanges, listening patiently from a distance. I think it’s important to note that this particular loss is part of my son’s story as well, if not more so. He will never have the comfort of seeing himself reflected in my face. Looking like one’s family brings an unspoken sense of belonging that my son will never know.

It’s uncomfortable and often socially unacceptable to mention anything negative when it comes to adoption, but these are significant losses. It has nothing to do with my love for my son or his acceptance in my family. There is both great joy and great loss in adoption–to acknowledge one without the other is to paint an incomplete picture of a complicated, messy, beautiful thing.

 

June Focus: Loss

Infertility introduces countless losses into the lives of those it touches. Sometimes, these are obvious consequences of the diagnosis–expectations or hopes that must be abandoned; dreams that will never come to fruition. Even losses that seem “small” or “insignificant” can be devastating: the grief they evoke both blindsiding and enduring.

Whether the re-routing of a dream or the letting go of a single aspect of expected life, these losses not only shape our lives, but the people that we are at the very core. They impact our view of the world, our religious beliefs and relationships, identity and intentions. Many of these life (and self) changing losses go unspoken. They are consequential to who we are, yet are often misunderstood or simply unknown.

Over the month of June, we hope to demystify some of the losses specific to infertility by opening windows into personal experiences. We hope that these stories will validate or even reveal the losses most effecting you in your own season of infertility. Perhaps these stories may even serve to help you understand those around you who are grappling with losses that are shifting what they know about themselves and their world.